Education
Family Toolkit
Printable + mobile-friendly tools you can use immediately.
Emergency Snapshot
Diagnosis, baseline, meds, allergies, hematology team, what helps during a crisis.
Pain & Symptom Diary
Track pain level, triggers, hydration, meds taken, and what worked.
Appointment + Lab Tracker
Dates, questions to ask, results, and next steps.
Community Education
Short, clear education for families, churches, schools, and workplaces.
SCD Basics (5 minutes)
What it is, how it’s inherited, and why crises happen.
Crisis Signs
When to call the doctor vs. when to go to the ER.
Caregiver Tips
Hydration, warmth, rest, stress, and preventing triggers.
Advocacy & Awareness
We raise visibility and help families advocate for better outcomes.
Advocacy Toolkit
How to speak up in schools, ER visits, and care planning.
Community Awareness Drives
Ribbon days, booths, partnerships, and local campaigns.
Support Research
Fundraisers + partnerships that help advance treatment outcomes.