Our Story

The Buie Sickle Cell Foundation exists to raise awareness of sickle cell disease and to support research efforts aimed at improving treatment outcomes and quality of life.

Founded in honor of Aiden Buie, Saquon Buie, and the late Kevin Buie, the Foundation is dedicated to education, advocacy, and community engagement.

The Buie Sickle Cell Foundation is a North Carolina nonprofit organization committed to increasing public awareness of sickle cell disease through educational initiatives and community events, while also supporting medical research aimed at improving treatment options and long-term outcomes.

Our Mission

Our mission is to educate communities about sickle cell disease, advocate for improved care and equitable treatment, and support research initiatives that advance medical knowledge and patient outcomes.

Our Vision

We envision a future where individuals and families affected by sickle cell disease receive timely diagnosis, compassionate care, effective treatment options, and strong community support—leading to longer, healthier, and more fulfilling lives.

Leadership

Founder / President: Emilie Fine
Vice President: Adonnis Buie
Founded: 2026
Service Area: North Carolina + beyond
Core Values: Compassion • Education • Action • Community

Why This Matters

Sickle cell disease disproportionately affects underserved communities and remains widely misunderstood. Families often face delayed diagnoses, limited resources, and barriers to quality care.

Through education, advocacy, and research support, the Buie Sickle Cell Foundation works to close knowledge gaps, empower families, and amplify the voices of those impacted by sickle cell disease.