Get Help & Resources
This page can be your “start here” hub. Customize any sections based on what you offer right now.
Newly diagnosed
Suggested starter list to include on your site:
What sickle cell is
Simple explanation + inheritance infographic
Common triggers
Cold exposure, dehydration, stress, infection
First 30 days checklist
Provider visits, vaccines, pain plan, school notes
Emergency prep
Add a downloadable “Emergency Snapshot” PDF for ER visits and caregivers.
Know the red flags
Chest pain, trouble breathing, high fever, severe pain
Carry a plan
Meds list, allergies, baseline labs if available
When in doubt, get care
Call your care team or seek urgent evaluation
Caregivers
Tools to make day-to-day easier:
Pain diary
Track triggers, severity, meds, and what helped
Appointment log
Questions, notes, labs, and next steps
Hydration + warmth plan
Especially during colder weather or travel
School support
Add downloadable school letters and a one-page “SCD at School” guide.
Common accommodations
Water access, restroom breaks, temperature control
Attendance plan
Absences during crisis—makeup work support
PE modifications
Avoid overexertion, allow breaks, avoid cold exposure
Request support
Use this form for general questions or support requests. (This will open an email draft.)